Beyond the Pale Folklore, Family and the Mystery of Our Hidden Genes |
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Author:
| Urquhart, Emily |
ISBN: | 978-1-909762-33-6 |
Publication Date: | Apr 2016 |
Publisher: | Jacaranda Books Art Music Ltd
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Book Format: | Paperback |
List Price: | AUD $37.99 |
Book Description:
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Emilys story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and ......
Emilys story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and ......