Public Policy in ALS/MND Care An International Perspective |
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| Editor:
| Blank, Robert H.
Kurent, Jerome E.
Oliver, David |
| ISBN: | 978-981-15-5842-9 |
| Publication Date: | Nov 2021 |
| Publisher: | Palgrave Macmillan
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| Book Format: | Paperback |
| List Price: | USD $119.99USD $119.99 |
Book Description:
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This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a...
More DescriptionThis book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.